Who Are We

The Niemann-Pick Disease Group (UK) is a charitable organisation offering support and information to families affected by Niemann-Pick diseases and to associated health and social care professionals.

We are here:

  • To provide care, support and advice

  • To listen and to answer your questions

  • To raise awareness and enable research

  • To provide HOPE for the future


    Jaime Horne’s Half Marathon

    My cousin Kelly is the reason I wanted to run a half marathon for Niemann-Pick. She is a beam of sunshine and delight to be around. No matter how she is feeling she has a shining smile for you and is the bravest woman I have ever known!!  Kelly turned 30 last year so I decided […]

    Ewa Maria Hill – 30K triathlon

      Ewa Hill grew up with Jim Green’s children, Murray and Roy,  and has been a life-long supporter of the Niemann-Pick Charity. Being also a keep-fit fanatic, when she conceived the idea of celebrating her 30th birthday with a matching 30k triathlon, it was an obvious step to raising funds for the Charity by athletic […]

    East African Classic Rally for Niemann-Pick Type C

    . As the dust finally settles on the savanna and an epic adventure comes to an end it’s time for a reflection on what was and what could have been in the East African classic safari rally 2013 We teamed up with five Crews who were part of the NPC team on the 10 day […]

    More Events